The Role of Social Media in Kidney Disease

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By Lucas Mann, Bartlesville High School 

Ashley Winn is a nurse in Oklahoma but she never thought she’d be the one needing help. Winn has is polycystic kidney disease. She is one of several thousand in the nation with chronic kidney disease. Katie Hallum is another Oklahoman with kidney disease. This story illustrates the perspectives of patients with CKD and the organ donation processes. Most organ donors are matched to patients through various organizations, such as Organ Procurement and Transplantation Network (OPTN) but as social media becomes more popular cases have been found where people use TikTok to find donors.